What you’ll do
About Me
I am a 9‑year‑old boy who is non‑verbal and non‑mobile, but I express myself through facial expressions and the noises I make. I have extensive care needs and require support and supervision 24 hours a day. I am visually impaired, so keeping me informed about what’s happening around me is very important—it helps me feel safe and reduces the risk of me becoming startled, which can sometimes trigger a seizure.
I live at home with my mommy and daddy. I’m an only child and am surrounded by a loving, supportive family.
When I was a baby, I experienced infantile spasms and was diagnosed with West Syndrome. In 2020, I was further diagnosed with Proud Syndrome, a rare neurological condition characterised by severe intellectual disability, agenesis of the corpus callosum, and seizures. I experience pain from dystonia, which may be linked to headaches caused by my earlier infantile spasms. In September 2025, I was fitted with a Vagus Nerve Stimulator (VNS) because medication alone wasn’t enough to control my seizures. I always carry my magnet with me—this is very important to manage my seizures safely. When I have a seizure, I need someone to stay with me, speak gently and reassuringly, and make sure that I am safe throughout. I need full assistance with continence care, including the use of single‑use catheters and incontinence pads.
Sometimes, I can feel anxious, so I benefit from emotional support—talking to me softly, describing what you can see, and telling me about different textures helps me feel calm and included. I receive support and respite from Hope House Children’s Hospice. I no longer attend school because it was felt that it wasn’t safe for me, and my parents are working to arrange home schooling, which will help me stay healthy and allow me to learn and enjoy activities in the comfort of my own home.
Qualifications
What we’re looking for:
- Someone who is reliable and punctual
- Has excellent communication skills
- Shows patience, kindness, and a calm temperament
- Be able to respond sensibly and calmly in all circumstances
- Promote choice, respect, and dignity
- Be observant and willing to gain a deep understanding of me and my needs
- Want to be part of my everyday life—filling it with joy, encouragement, and security
- Be able to record information accurately, clearly, and promptly
What I’m Looking for in Support
I’m looking for someone who can create a calm, peaceful environment around me. This helps me stay relaxed and can reduce the frequency of my seizures. All sensory input is important to me—I respond best to calm, gentle, kind, and compassionate people who are patient and non‑judgemental. please be my friend as well as my professional carer. Always give me choice, keep me safe, and help make my days comforting and happy. I really look forward to meeting you.
Additional Information
Here’s what makes us different:
- Free DBS check – we cover the full cost of the DBS application
- Full training & paid induction - no experience needed
- Career growth - clear progression into senior & leadership roles
- Family-friendly - enhanced leave for life’s big moments
- National opportunities - relocate and continue your career within CCH
- Perks & discounts - Blue Light Card, RAF scheme, and more
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